Mrs Natividad Miles1
1Sydney Local Health District, Camperdown, Australia
Biography:
Natty Miles is a highly experienced renal and palliative care nurse. With a strong background in managing chronic kidney disease (CKD), with expertise in person-centred care, shared decision making and palliative care principles. Currently based at Royal Prince Alfred Hospital, in which she holds the position of Kidney Supportive Care Clinical Nurse Consultant.
Abstract:
Background:
Patient-reported experience measures (PREMs) play a vital role in evaluating the quality and performance of healthcare services. In renal supportive care (RSC), PREMs provide valuable insight into patient and carer perspectives, helping to identify strengths in service delivery and areas requiring improvement. Incorporating patient experience data supports person-centred care and continuous quality improvement for people living with chronic kidney disease (CKD).
Aim:
To evaluate the experience and satisfaction of patients with CKD and their carers accessing a renal supportive care service.
Methods:
Patient-reported experience measures (PREMs) surveys and letters were collected from patients accessing the RSC service via the Health Outcomes Patient Experience (HOPE) digital platform. Surveys were completed electronically by patients or carers. The survey included nine items assessing patient experience and satisfaction. Letters from patients and carers were thematically reviewed.
Results:
A total of 130 surveys were returned, representing an 80.7% response rate. Of these, 54% were completed by patients and 46% by carers. Overall, responses demonstrated high levels of satisfaction, with most questions rated as “very good,” “good,” or “yes, always.” Areas receiving comparatively lower ratings related to treatment planning and information provided for managing care at home. Free-text responses highlighted both positive experiences and opportunities for improvement.
Conclusion:
PREMs data demonstrated high overall satisfaction with renal supportive care services. However, targeted strategies to improve communication around treatment planning and home-based care management may further enhance patient and carer experience and support ongoing quality improvement in renal supportive care.