Talk Description
421R - Research Paper
Abstract:
Aim:
To understand the characteristics of working aged adults with advanced CKD referred for KSC.
Method:
Using a cross-sectional design, adults (18-64 years) with advanced CKD referred between February 2016 and July 2021 were included. Data extracted from hospital records were demographic, clinical, symptoms (Integrated Palliative Care Outcome Scale Renal [IPOS-Renal]), health-related quality of life (HRQoL; European quality of life [EQ-5D-5L]), and advance care plan (ACP) completion.
Results:
Of 856 people referred during the study period, 156 (18%) were working aged adults (median age 57 years) with 69% receiving kidney replacement therapy. The majority were referred for symptom management (53%). The most prevalent symptoms were weakness (92%), poor mobility (83%), and pain (82%). Those on dialysis had significantly higher symptom scores than those not receiving dialysis (p<0.05).In terms of HRQoL, more than 90% reported problems with mobility and pain, and 11.7% reported that they were unable to conduct usual activities. Completion of an ACP was low (29%).
Conclusion:
Regular monitoring and early identification of symptoms in all patients with advanced CKD—regardless of age and whether on dialysis or not—is necessary. An ACP should not be considered only for older people, and that leaving ACP discussion to a later time may cause rushed and late decision-making that is detrimental to wellbeing.
Abstract:
Aim:
To understand the characteristics of working aged adults with advanced CKD referred for KSC.
Method:
Using a cross-sectional design, adults (18-64 years) with advanced CKD referred between February 2016 and July 2021 were included. Data extracted from hospital records were demographic, clinical, symptoms (Integrated Palliative Care Outcome Scale Renal [IPOS-Renal]), health-related quality of life (HRQoL; European quality of life [EQ-5D-5L]), and advance care plan (ACP) completion.
Results:
Of 856 people referred during the study period, 156 (18%) were working aged adults (median age 57 years) with 69% receiving kidney replacement therapy. The majority were referred for symptom management (53%). The most prevalent symptoms were weakness (92%), poor mobility (83%), and pain (82%). Those on dialysis had significantly higher symptom scores than those not receiving dialysis (p<0.05).In terms of HRQoL, more than 90% reported problems with mobility and pain, and 11.7% reported that they were unable to conduct usual activities. Completion of an ACP was low (29%).
Conclusion:
Regular monitoring and early identification of symptoms in all patients with advanced CKD—regardless of age and whether on dialysis or not—is necessary. An ACP should not be considered only for older people, and that leaving ACP discussion to a later time may cause rushed and late decision-making that is detrimental to wellbeing.